Carers

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These resources are designed to share the principles and practice of supporting carers. They are aimed at organisations, professionals, and patient and carer leaders who would like to learn more.

Of all the areas of health and care, this is one where partnership between the NHS, local government and third sector organisations is essential.

“When we're caring, it can feel like we're living with the shadow of isolation‚”

“We wouldn’t have it any other way‚ living with granny during this has taught us all so much as a family. We have shaped our world around her.”

Which story do we want?

The resources include: Guidance and policy, Webinar resources from Patient Voice South webinars, Case studies and projects that provide examples of good practice, Useful links and a link to Carers resources in the Patient Voice South library.

Guidance and policy 

Caring Together - an integrated approach to identifying and assessing carer health and wellbeing

NHS England and its partners have developed a practical toolkit to help health and social care organisations work together in identifying, assessing and supporting the wellbeing of carers and their families. The toolkit covers new duties on NHS organisations brought about by the Care Act 2014 and the Children and Families Act 2014, and includes numerous examples of positive practice.
Download the toolkit here.

John's Campaign

John’s Campaign is a national movement to help NHS staff recognise the importance of working with family carers as equal partners in the care and support of people with a dementia who are in hospital.

John’s Campaign was founded in November 2014. Behind its simple statement of purpose lies the belief that carers should not just be allowed but should be welcomed, and that a collaboration between the patients and all connected with them is crucial to their health and their wellbeing. John’s Campaign applies to all hospital settings: acute, community, mental health and its principles could extend to all other caring institutions where people are living away from those closest to them.

Implementing John's Campaign booklet gives care providers some simple and practical solutions to implement changes in visiting hours for people who have dementia.

Webinar resources

Webinar resources - Implementing the 2014 Care Act 

These Patient Voice South web seminars, held on December 13th & 15th 2016, were led by Kath Rooksby, Quality & Safety Improvement Manager for NHS England South (South Central).

The discussions focus on practical steps for NHS, Local Authority and voluntary sector organisations who are supporting carers. The contributors include a GP practice manager, a voluntary sector leader in carer support, and those leading Better Care Fund work.

Case studies and projects

Don't let the carers of today become the patients of tomorrow
Improving carers' support in a Gloucestershire GP practice. 

Carers Gloucestershire: a local carers association
An introduction to the challenges and work of a local carers organisation, by Tim Poole, Chief Executive of Carers Gloucestershire with perspectives from carers.

Caring in Practice 
Jenny Vallely, Practice Manager at Locking Hill, talks to Dr Hein Le Roux of Minchinhampton surgery, about their Carers project.

The seven principles of supporting carers - principles and practice 
In October and November 2016 NHS England (South) and The Association of Directors of Adult Social Services (ADASS) held two events to help local areas move forward on their commitment to carers. See the presentations and learn about the seven principles and examples of local action.

Carer library resources 

The Patient Voice South library includes a collection of more resources to help you champion patient experience and public participation in your organisation. 

Carer library resources